Terence is managing his condition 

Some people have Paget’s disease in just one bone (monostotic) whereas others have it in several (polyostotic). Terence has polyostotic Paget’s disease. Here he describes how he copes. 

I have Paget’s in my pelvis, lower back and neck. In 2001, I wrote an article, “Terry’s Tale”,  in the Paget’s News magazine. In the following years, I looked after my wife, often pushing her in a wheelchair. She passed away in 2013, by which time I was suffering a lot of pain with tingling, numbness and weakness in my legs. My specialist suspected pressure on nerves and therefore, prescribed Gabapentin. I also had an infusion of Zoledronate, which lowered my alkaline phosphatase from 375 to 68. I now “manage” my condition with regular back/leg massage and don’t allow myself to get too tired. 

Terence