Join us live online - at 2pm on the 11th January
On the first-ever Paget’s Awareness Day, the Paget’s Association is asking you to join them online for a live Paget's Information meeting (webinar). This free event can be viewed on your computer, tablet or phone as it happens at 2pm GMTon the 11th January 2019. There will also be an opportunity to ask the experts questions from the comfort of your home! The hour-long event will be chaired by Professor Roger Francis and streamed live from the James Paget University Hospital in Great Yarmouth.
DETAILS OF HOW TO WATCH THE MEETING ONLINE WILL BE POSTED HERE IN DUE COURSE.
COME FOR LUNCH - If you live locally, you can also come along for lunch at 1pm on the 11th January, at the Burrage Centre, in the James Paget Hospital, Lowestoft Road, Gorleston, Great Yarmouth, Norfolk NR31 6LA. Lunch will be followed by the hour-long meeting and then there will be time for informal discussion.
The launch of the New Paget's Guideline
Professor Mike Stone will be joining us at the above meeting to launch the newly published clinical Guideline for the ‘Diagnosis and Management of Paget’s Disease of Bone in Adults’. The Guideline was commissioned by the Paget’s Association. It is based on all currently available evidence, has been written by a group of international experts in the field, with patient involvement, and has been endorsed by several major international organisations with an interest in Paget’s disease. The full programme for the event will be available here shortly.
What's it all about?
The Paget’s Association has declared the 11th January to be International Paget’s Awareness Day. The 11th January 2019 will, therefore, see the first ever Paget’s Day to raise the profile of Paget’s disease, both throughout the UK and internationally. We would like everyone to get involved. There are many ways that you can take part and help raise awareness. Watch this short video to find out more about the Paget's Awareness Day, then scroll down for details of events, a competition and much more!
JOIN US AT AN EVENT ON PAGET'S DAY - 11th January
In addition to our live online event mentioned above, which everyone can take part in, Paget's Information events are taking place in the following hospitals:
James Paget Hospital, Great Yarmouth (see above)
Edinburgh - details to follow
Salford Royal Hospital - details to follow
Manchester Royal Infirmary - A Paget's Information Event and Centre of Excellence Award Ceremony will take place from 1pm - 4pm. Full details to follow.
Contact us to find out more or check back here for details when they are available.
PRESS RELEASE - you can read our press release here: First Paget's Awareness Day press release
Why are we holding a Paget's Awareness Day?
We need to find those who don’t reach medical attention! Although there has been progress in alleviating the effects of Paget’s disease, much more remains to be done. The Paget’s Association believes that correct diagnosis is the key, as the condition often goes undetected until complications such as fracture, deafness and bone deformity have already occurred.
NEW CLINICAL GUIDELINE: In order to ensure that Paget’s is diagnosed and managed well, we are launching the new clinical Paget's Guideline on the 11th January.
Paget’s Patient Passport: To aid communication across the health care system, the Charity has also launched a Paget’s Passport, which is a patient held record to help improve communication between healthcare professionals.
Why the 11th January? The 11th of January, 2019, will mark the 205th anniversary of the birth of Sir James Paget, in Great Yarmouth, Norfolk. Sir James Paget was one of the most respected surgeons of his time. Some of the significant figures that he treated included Queen Victoria and The Prince of Wales. Such was his impact and influence, that as well as being a successful surgeon, he came to be regarded as the ‘Father of British Pathology’. Various universities and institutions bestowed honours on him and he was the President of the Royal College of Surgeons in England, as well as a Fellow of the Royal Society. Sir James had several conditions named after him, one of those, of course, is Paget’s Disease of Bone. We are proud to have Sir James Paget’s great, great grandson, Sir Henry Paget, as a Patron of our Charity.
We Need You! The Paget’s Awareness Day is an opportunity to raise the profile of Paget’s Disease of Bone. We are doing as much as we can to promote the Day, but we need your help. We want as many members as possible to get involved. Here are some ideas.
Display a Poster You can download and print extra posters here soon or request some from the office (0161 799 4646). Visit your local health centre, pharmacy, library, Church or community centre and ask whether they will display the Paget’s Awareness Day poster. You can download a poster here: Paget's Awareness Day POSTER
Take a Photo. We would love it if you could take a photograph of yourself wearing blue and green, for possible inclusion in our May newsletter. Send your photo by email to, [email protected], or post to, The Paget’s Association, Suite 5, Moorfield House, Moorside Road, Swinton, Manchester, M27 0EW.
Donate. Could you donate £10 on Paget’s Awareness Day? We would like our first ever Paget’s Day, not only to raise awareness but also to raise funds for Paget’s research. See page ? for details of how you can donate and don’t forget to tell us you are donating for Paget’s Day.
Buy a Paget’s Badge. To promote our work, we will shortly have some new enamel badges. These are available at £3 each. You will be able to order your badge in our online shop.
Wear Blue and Green. One way you can support us on Paget’s Awareness Day is by wearing blue and green, the colours of the Paget’s Association’s logo. Perhaps you have a blue top and a green scarf? If you don’t have anything in blue or green, you can purchase a tie, scarf set or another item of clothing from the Association. Go to the shop.
Post on Social Media. Use social media to join in our discussions on the day and share our posts. You can post or tweet your own pictures as well.
Enter our Photo Competition. You could win a £25 shopping voucher plus a Paget’s Goody Bag by entering our Paget’s Day Photograph Competition. The theme is blue and green, which means that we want you to take a photo of anything, as long as the blue and green theme is adhered to. You could, for example, take a photo of a country scene with blue sky and rolling green hills, or blue flowers in a green vase, or a photo of yourself and your family wearing blue and green. The possibilities are endless! Send your photograph by email or post using the details below. The closing date is the 30th January 2019. Email your entry to - [email protected] Alternatively, post to Paget’s Day Competition, The Paget’s Association, Suite 5, Moorfield House, Moorside Road, Swinton, Manchester, M27 0EW.
Competition Rules. The competition is for members of the Paget’s Association only. The winner will be selected at random from the correct entries. The Paget’s Association’s decision is final. Winners will be notified within one month after the competition closing date. The prize is non-negotiable, non-transferable and there is no cash alternative. Only one entry per household. The competition is only open to UK residents. The competition is not open to employees or their immediate family. The competition is not open to trustees of the Paget’s Association or their immediate family. The Paget’s Association cannot accept responsibility if emails or hard copies are not received. Incorrectly completed entries will be disqualified. Entries received after the specified closing date will not be accepted. When you enter the competition, you agree to the above rules.
Knit for Paget’s. Could you Knit something for Paget’s? Perhaps a scarf or a toy? It can be anything you like, so feel free to use your imagination! We would really appreciate it if you could use blue and green to tie in with our Paget’s Day theme.
• You can use your own materials or contact us for wool and needles, if you need them.
• Perhaps your friends will sponsor you to knit.
• When you’ve made your item, decide what you would like to do with it. Here are some ideas:
- Sell it to a friend to raise funds for Paget’s research.
- Send your item to the Paget’s Association so we can sell it to others who would like to support us.
- Make a scarf for friends or family.
ADD THE 11TH JANUARY, TO YOUR CALENDAR.
Help make the first Paget’s Awareness Day a success. Put the 11th January on your calendar, join us for our online meeting, and do something, however large or small it may be, to help us raise awareness of Paget’s disease on this special day!