Learn about Paget's Disease from our Videos
Those diagnosed with Paget’s disease of Bone have many questions. The videos below will help answer your queries.
Ron and Keith have Paget's disease and they attended one of our Information Events. Watch the video to hear what they have to say and if you would like to hear what was said by the expert speakers, you can order a set of educational DVDs - see below for details.
Learn more about Paget's Disease from the experts
Expert speakers discussed many aspects of Paget’s disease at our September 2017 Information Day, including causes, treatment and research. If you were not able to attend the event or you want a reminder of what was said, watch these snippets and, if you think the full talks will be useful to you, then scroll down to order a set of 3 DVDs.
DVD 1: Experts Discuss Paget's Disease of Bone
Experts discuss Paget's Disease: what it is, the causes, incidence, and distribution, and also the production of new Guidelines. Professor Graham Russell introduces the expert speakers. Dr Daroszewska discusses what Paget’s is. Professor O’Neill considers the causes, distribution and incidence of the condition, Professor Stone examines treatment and Dr Tuck updates the audience on the new Professional Guidelines.
DVD 2: Paget’s Research plus Patients Question Experts about Paget’s Disease
Professor Layfield, Dr Burrell, Dr Green and student, Jasmine Sanghera, discuss aspects of research into Paget’s disease. Professor Roger Francis then leads the Question and Answer session.
DVD 3: Patient Experience and the Benefit of Research to Patients
Professor Fraser discusses how past, current and future research benefits patients. Simon Leigh, explains how his pagetic leg was straightened and how he coped with the aftercare. Our Specialist Paget’s Nurse, Diana Wilkinson, reflects on how Paget’s disease can affect individuals and how the Paget’s Association provides advice and support.
Set of 3 DVDs Available Now
Almost everything you ever wanted to know about Paget’s Disease can be found on this set of 3 DVDs. The talks are listed above and the total viewing time is approximately three hours and the DVD set is available for just £5 plus £3.50 postage and packing. You can either order online or print the order form and post it to us or telephone 0161 799 4646.