Newcastle Upon Tyne

Paget’s Information Day and AGM - our MAIN EVENT for 2018 is on the 20th September, in Newcastle. 
Venue: The Darwin Suite, Biomedicine West Wing, Centre for Life, Times Square, Newcastle upon Tyne NE1 4EP.
Time: 9.30 – 15.30

Our main Information Event this year is taking place in Newcastle on Thursday 20th September. If you would like to learn more about Paget’s disease and have your questions answered, then please come along. The event is for anyone who has Paget’s disease, their carers and family members. Health professionals and researchers who have an interest in Paget’s disease are also very welcome to attend.

Topics and Speakers

If you have been to one of our Information Days before, you will know that they have always been extremely informative, addressing key issues on Paget’s disease. Below you will find details of just some of the topics and speakers. When the full programme has been finalised, it will be available here.

Professor Mike Stone, from Cardiff, will be revealing the conclusions of the committee responsible for writing the new clinical Guideline for the diagnosis and management of Paget’s disease. Professor Stuart Ralston, from Edinburgh, and Professor Rob Layfield, from Nottingham, will be discussing the directions that research into Paget’s disease is taking. Dr Fraser Birrell, Consultant Rheumatologist, from Newcastle, will be talking about osteoarthritis. Mr Keith Simpson will be explaining how Paget’s disease has affected him and how he has overcome the complications that he faced. Sr Diana Wilkinson, Specilaist Paget's Nurse, will be looking at new developments to help patients. Falls are common, particularly as we get older, and Dr James Frith, from Newcastle, will be discussing the risks, how to avoid falling and what to do if you find yourself on the floor. Strength and balance exercise is an important way to prevent falls and Anne Sutcliffe, who you may remember, was the first Health Care and Education Officer for the Paget’s Association, will be discussing and demonstrating exercises. You may even wish to join in!

Ask the Experts a Question: This is an important part at the end of the day when those attending can ask questions on any aspect of Paget’s disease, that have not already been answered during the event.

When will I Receive Full Details? Final information will be sent to you approximately two weeks prior to the event. In the meantime, if there is anything you need to know, please don’t hesitate to get in touch with Sue Clegg by email, [email protected] or telephone, 0161 799 4646.

The Venue: The Centre for Life is a science village in the heart of Newcastle-Upon-Tyne. It incorporates an award-winning visitor attraction and educational facility. The building also houses research facilities which include biotechnology companies and an internationally renowned institute belonging to Newcastle University.

How do I Book?
Places are limited so if you would like to attend, please use the contact form or telephone 0161 799 4646 to request a booking form. There is also a booking form in both the May and August 2018 editions of our Paget's Newsletter.

Is there a Fee to Attend? There is no charge to attend this event and a light lunch will be provided.

Travel: For anyone travelling by train or metro, the location of the Life building is just a couple of minutes’ walk from Newcastle Central Station. Many local buses stop just next to the Central Station. Car parking is available in a multi-storey car park next to the centre.

The Annual General Meeting
A small section of the day (approx. half an hour) will be given to the Paget’s Association’s Annual General Meeting. This is your opportunity to find out all that has been happening at the Association in the last twelve months.

Join us 

We would like to see as many as possible at these events, particularly those who suffer from Paget's disease. For more information regarding the events and to book a free place, you can use the contact form or telephone 0161 799 4646.