International Paget's Day 2020
We are looking forward to our second International Paget’s Awareness Day, on the 11th January 2020. We want to create a day of activity around the world dedicated to raising awareness of Paget’s disease.
Tune in on the 11th January 2020
Focusing on the multi-disciplinary Paget’s research at Norton Priory in Runcorn, Cheshire, which has already attracted international interest, this year’s theme is ‘Ancient and Modern Paget’s Disease’. On the 11th January we will be releasing a video filmed at Norton Priory, where we interviewed researchers and clinicians regarding the exciting research into medieval skeletons. This research could change the way conditions, including Paget’s disease, can be traced through history and therefore open opportunities to change the way we research diseases in the future. The video will be available to view on our website (go to the home page on the 11th January) and will be shared via social media.
How You Can Make a Difference…
Put up a Poster
Can you put up a poster in your local area? This could be in your GP surgery, local library, community centre or on a community noticeboard, to let anyone who might need us, know we are here. You can request a poster by contacting us or download and print a poster: Paget's Awareness Day 2020 A4 Poster
Request a Display Pack for your Health Centre
You can request a Paget’s Awareness Display Pack for your fundraising event or if you are unable to hold an event yourself, please consider taking a pack into your GP surgery and ask them to display it in the waiting area. You may also have a community centre where you could put up a display. The Display pack contains bunting, posters, leaflets and banners.
To request a free pack please complete contact us.
Watch and Share Our Exciting New Video on 11th January
Visit the home page of our website on Paget’s Awareness Day, where you will be able to watch the video mentioned above. Don't forget to share it with your friends on social media.
Bringing Paget’s Back into the Spotlight
We have been looking back at our history as an Association, and how things have evolved from our roots, in the home of founder Ann Stansfield, in Manchester in 1973. Ann’s determination to raise awareness of Paget’s disease, at a time when little was widely known about the condition is what helped to bring Paget’s disease into the public eye, leading to people being diagnosed and treated for the condition. Ann’s kindness and dedication offered support to people with the condition and is the foundation of our Association. We aim to continue Ann’s hard work in spreading awareness of Paget’s disease and helping to bring relief to those affected by the condition in the future. We want Paget’s Awareness Day to educate professionals, and the public about Paget’s, and how it can affect those with the condition. We also want those who are concerned about Paget’s disease to know that they are not alone, and that support is available. We would encourage our members to be a part of this special Paget’s Day and request your help to make a difference.
Photos and videos from Paget's Day 2019
We would like to thank everyone who got involved in the very first International Paget's Awareness Day on the 11th January 2019. Scroll down for details of events that took place on the day and photos.
The main event was a live broadcast (webinar) held at the James Paget University Hospital in Great Yarmouth on the 11th January 2019. YOU CAN WATCH A RECORDING OF THE WEBINAR by following this link.
Support from Brandon Lewis MP
The webinar was a fantastic opportunity to showcase the new clinical Guideline for the ‘Diagnosis and Management of Paget’s Disease of Bone in Adults’. - follow this link for details.
A 205th Birthday Celebration
A retired surgeon from the James Paget NHS Foundation Trust, Mr Hugh Sturzaker MBE, spoke eloquently about the life of Sir James Paget, who was born 205 years ago, on the 11th January 1814, in a house in South Quay, Great Yarmouth. Today, a blue plaque marks his birthplace. Sir James Paget was the first to describe several conditions, including Paget’s Disease of Bone. He was surgeon to Queen Victoria, and indeed, one of the most respected surgeons and pathologists of his time. The Paget’s Association is proud to have Sir James Paget’s great, great grandson, Sir Henry Paget, as a Patron and was pleased that he could attend the event in Great Yarmouth.
The patient’s perspective was provided by Trustee, Keith Simpson, who shared his personal experience of Paget’s disease. Paget’s disease caused a traumatic fracture of his leg and whilst this was successfully repaired, he later spent many years in pain, searching for a surgeon who would replace his hip. Through the Paget’s Association Keith was able to find the help he needed and, following successful surgery, he decided to help others by becoming a Trustee of the Association. Keith said, ‘Until I found relief, Paget’s caused me tremendous pain and suffering. It is imperative that we help those who haven’t yet found the answers and treatment that they so desperately need.I
Award Ceremony in Manchester Dr Stephen Tuck, our Vice-Chairman, attended a Paget’s Information Meeting at Manchester Royal Infirmary to present a Centre of Excellence Award to Professor Peter Selby and his team.
Information Meeting in Edinburgh Our new Chairman, Professor Stuart Ralston, held a Paget’s Information Event at the Western General Hospital in Edinburgh. Patients and staff were given the opportunity to hear presentations, by the research team, regarding some of the clinical trials and laboratory research that is taking place from the Institute of Genetics and Molecular Medicine.
Paget’s Meeting at Salford Royal Hospital An event was also held for patients and staff at Salford Royal Hospital, where Professor Terence O’Neill arranged the event to mark the first International Paget’s Awareness Day.
Did you wear Blue and Green on Paget's Day? One way we asked for support was to ask people to wear blue and green, the colours of the Paget’s Association’s logo. Do send us your photos.
ADD THE 11TH JANUARY, TO YOUR CALENDAR EVERY YEAR!
We would like everyone who got involved.
Help make every Paget’s Awareness Day a success. Put the 11th January on your calendar and do something, however large or small it may be, to help us raise awareness of Paget’s disease on this special day!