Free Paget's Information Day

21st September 2017 - Manchester
Venue: St Thomas Centre, Ardwick Green North, Manchester, M12 6FZ. St Thomas Centre is within easy reach of Manchester city centre and Piccadilly station.
Time: 09:30 – 15:30  Refreshments and lunch will be provided.

To book download the: Manchester Paget's Booking Form Final information will be sent to you approximately two weeks prior to the event.

Who is the event for? If you have been to one of our Information Days before you will know that they are very informative. The event is for people with Paget’s disease, their carers, family members, health professionals, researchers and scientists. Refreshments and lunch will be provided.

Causes, Treatment, Research and Patient Experience

The audience will be welcomed by our Honorary President, Professor Graham Russell, who will chair the morning session. Last year, Dr Anna Daroszewska organised a Paget’s event in Liverpool. Those who were in attendance will remember how, using animated cartoons and slides, she explained the current understanding of the underlying mechanisms driving Paget’s disease. The illustrations helped visualise the pathology at cell and tissue level. We have invited Dr Daroszewska, to give a similar talk at the Manchester event.

Professor Terrence O’Neil, from Salford, will be sharing his insights into the epidemiology of Paget’s disease. Epidemiology is the study of the incidence, distribution and causes of a disease. Dr Mike Stone, from Cardiff, will then take the floor to discuss current treatment of Paget’s disease.       

Patient Experience

You may have read in our May newsletter, about how Simon Leigh is having his bent leg straightened. We are pleased that Simon will be joining us at the Information Day, to talk about his experience. Our Specialist Paget’s Nurse, Diana Wilkinson will be available throughout the day and will give a presentation highlighting the effects of Paget’s disease on individuals, and the support offered by the Paget’s Association.

Research

Research will be high on the agenda and we welcome back one of last year’s Student Research Bursary awardees, Dr Darrell Green, who will update us on his research into Paget’s disease and the very rare complication of osteosarcoma (bone cancer). Dr ob Layfield, from the University of Nottingham, has been involved in Paget’s research for over 15 years. We are pleased that Dr Layfield is able to join us to provide an update on the ongoing Paget’s research at Norton Priory in Runcorn. A number of researchers from different universities are involved in this multi-disciplinary project, which focuses on trying to understand why so many of the medieval skeletons at Norton were affected by a particularly severe form of a disorder resembling modern day Paget’s disease. The project includes research funded by the Doreen Beck Student Research Bursary. This was awarded by the Paget’s Association, to Carla Burrell, in 2015. Carla, who is now Dr Burrell, will update us on her research.

We are fortunate to have Patron of the Paget’s Association, Sir Henry Paget, joining us to present the Sir Julian Paget Student Research Bursary Award, in memory of his late father Sir Julian Paget. Sir Henry is the great-great grandson of Sir James Paget, after whom Paget’s disease was named. The student who receives the award will present their Paget’s research project. We will also welcome Dr Michael Davie who will present the Michael Davie Student Research Bursary Award. Last year, Ana Navarro Martinez, a research student from Nottingham was the recipient of this award. Ana explained how she would be working with the team at the University of Nottingham and how she wanted to make a significant impact on the research being carried out at Norton Priory. This year, a new student will receive the award and present their research plans.

You may remember that at last year’s September event we presented the Ann Stansfield Student Research Bursary, to Juan Núñez from the University of Southampton. Juan’s research, ‘Modulating the Blood Supply to Improve Bone Strength in Paget’s Disease’, has led to funding from the Institute for Life Sciences, for a PhD student to progress this research further. This is fantastic news and adds to the evidence of the value of our Student Research Bursaries. We know that research is important to our members so come along and discover the latest news.

The Paget’s Association’s AGM and More

Our Chairman, Professor Roger Francis, will chair the afternoon session and the Annual General Meeting (AGM), which will be a small section of the afternoon’s events. The AGM is your opportunity to find out all that has been happening at the Association in the last twelve months and ask any questions you have regarding the running of the Charity.

We also have an additional speaker who, at the time of writing, we have not been able to confirm. If however, you are coming along to the event, you can be assured of a very interesting day.

Questions and Answers: Those attending will have plenty of opportunities to ask the experts questions both throughout the day and during the question & answer session at the end of the day.

The Venue. The event is taking place at the St Thomas Centre, Manchester. The Centre is a renovated Grade 2 listed Georgian church - the third oldest church in Manchester. The building is home to the Greater Manchester Centre for Voluntary Organisation who manage the ground floor conference centre. St Thomas Centre is within easy reach of Manchester city centre and Piccadilly station. Please note there is very limited parking. Travelling to the venue by public transport may be preferable. 

How do I Book? To book, download the: Manchester Paget's Booking FormFinal information will be sent to you approximately two weeks prior to the event. If you require further information about the day please call Sue on 0161 799 4646.

Join us and help make this our best event ever.

You can also use the Contact form to enquire, book a free place or register your interest in an event.


 

 

 
Educational Events and Centre of Excellence Award Ceremonies

Why not come along to a Paget's educational event organised by a Centre of Excellence? The event will include presentation of the Paget's Association Centre of Excellence award by Professor Roger Francis. Details will be published on this website when they are available.

You can book a free place or register your interest in an event by using the Contact form or by telephoning 0161 799 4646.