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General Number: 0161 799 4646 Nurse Helpline: 07713 568 197

The Pagets Association
Suite 5, Moorfield House
Moorside Road
Swinton
Manchester
M27 0EW

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News & Events

Results of PRISM-EZ Trial Published

The results of the Long-Term Randomized Trial of Intensive Versus Symptomatic Management in Paget's Disease of Bone: The PRISM-EZ Study research study have been published in the Journal of Bone Mineral Research.

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Help Requested from Professionals

Help Requested from Professional Members of the Paget's Association The James Lind Alliance Rare Musculoskeletal Diseases in Adulthood Priority Setting Partnership brings together patients, carers and health care professionals to identify important unknowns in the diagnosis, treatment, management and care delivery for adults with rare musculoskeletal diseases.

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Paget's award in Newcastle-upon-Tyne

During a Paget's educational event on Thursday 22nd September, the Newcastle Bone Centre of the Freeman Hospital was officially presented with a Paget's Association Centre of Excellence plaque. Professor Roger Francis, Chairman of the Paget’s Association presented Consultant Physician, Dr Terry Aspray, and Dr Harish Datta, from Newcastle University with the award.

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Medieval Human Remains Provide New Insights into Paget's Disease

Linda Fenlon from Sale, Manchester, has good reason to be thankful that last month the new museum at Norton Priory opened its doors to the public. Linda suffers from Paget’s Disease of Bone and evidence of the condition has been discovered in an unusually high number of the medieval skeletons found at the Priory. They date back to the 13th century and are now on display as never before.

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Sheffield receives Paget's Award

Sheffield Teaching Hospitals NHS Foundation Trusts Metabolic Bone Centre has been awarded ‘Centre of Excellence’ as an exemplar facility for patients with Paget’s disease. The prestigious award recognises hospital and university departments which demonstrate excellence in both the treatment of Paget’s disease and research into the condition.

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Paget's in Nottingham

Dr Rob Layfield, Dr Peter Prinsloo and Prof Mark Searle were presented with a Paget's Association Centre of Excellence Award by Professor Roger Francis, Chair of the Paget's Association, on 27th January.

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Recardo Patrick: My Paget's Disease

British born Recardo Patrick first rose to fame as lead singer with the band Sweet Sensation who had a worldwide hit in 1979, with “Sad Sweet Dreamer”. Recardo was 48 when he was diagnosed with Paget's disease. Read more - follow the link above.

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Recycle your Stamps

The Paget’s Association is now recycling postage stamps. Will you save your stamps for us? Please also ask friends and family, schools, local companies etc., to save their stamps for Paget’s.

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