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Paget's Disease | Treatment | Stories | Events | Local Groups
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Local groups are a vital part of NARPD's work. They provide the "You're not alone" support central to self-help. This cannot be given by either medical professions or the NARPD office. Only a fellow sufferer really understands how Paget's disease feels.

As all NARPD members will know, the Association grew directly out of patient need. Mrs Ann Stansfield founded it in 1973 because of the lack of treatment available to her husband, and their feeling of isolation. Mrs Stansfield's aims were to enable patients to be better informed about their condition and to raise funds for research.

These ideals are still the cornerstones of NARPD's work today. Now, there is a network of over 2500 members and the Association has links with many doctors and researchers in hospitals and Universities.

Unfortunately, there are many NARPD members who are unable to meet with others either because there is not a group in close proximity or they do not feel well enough to travel to meetings on a regular basis. For those in this position who would like to make contact with other members we can put you in contact with a member in your locality via our Networking Scheme. We give you members details, how you make and maintain that contact, whether it be by letter, phone or visits is then entirely up to you and under your control. Under no circumstances would this information be released to anyone outside the Association.