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In
January
2011,
Paget’s
Association
was
accredited
under
the
Department
of
Health’s
Information
Standard.
The
Association
was
able
to
demonstrate
that
we
have
the
necessary
processes
and
systems
to
ensure
our
information
meets
the
rigorous
quality
criteria
of
this
scheme.
The
Information
Standard
ensures
that
the
information
published
is
supported
by
the
best
available
evidence
and
is
produced
according
to
strict
quality
control
guidelines.
A
kite
mark
will
be
displayed
on
our
publications
reassuring
readers
that
our
information
is
accurate
and
trustworthy
and
may
be
used
to
help
them
make
informed
decisions
about
management
of
their
Paget’s
disease.
Our
information
policy
The
Paget’s
Association
recognises
the
importance
of
information
that
is
accurate,
evidence
based,
up
to
date
and
easily
accessible.
It
acknowledges
that
patients
and
their
families/carers
require
this
information
in
order
to
understand
the
condition
and
make
informed
choices
about
care
and
treatment.
The
Paget’s
Association
acknowledges
the
aims
and
objectives
and
requirements
of
The
Information
Standard
Scheme
and
it
is
our
intention
to
comply
with
all
aspects
thus:
•
Identifying
the
need
for
information
and
producing
this
in
a
suitable
manner
for
our
target
audience
guided
by
a
documented
systematic
approach
•
Improving,
reviewing
and
updating
all
information
materials
in
an
efficient
and
timely
manner
•
Ensuring
that
all
involved
in
the
production
of
information
are
cognisant
with
the
requirements
of
the
Standard
and
in
agreement
with
this
policy.
•
Maintaining
records
demonstrating
acknowledgement
of
this
policy
and
its
implications.
Our
quality
standards
for
information
•
Information
will
be
relevant
to
the
user’s
needs.
•
Information
will
be
presented
in
a
clear
and
concise
manner,
using
plain
English
and
containing
the
appropriate
amount
of
detail
for
the
target
audience.
Publications
will
conform
to
house
style
guidelines.
•
All
unfamiliar
words
(such
as
medical
terms)
will
be
explained
in
the
main
text
•
Information
will
be
balanced
and
based
on
the
best
available
evidence.
It
will
acknowledge
conflicts
of
interest
and
relevant
uncertainties.
•
Clinical
information
will
be
checked
and
approved
by
Healthcare
and
Education
Officer
and
medical
trustees.
•
Information
will
be
checked
and
approved
by
lay
trustees
and
lay
representatives.
•
Publications
will
signpost
readers
to
other
relevant
external
organisations
and
resources.
•
Information
will
be
reviewed,
updated
and
amended
regularly.
•
An
archive
of
sources
used
will
be
maintained
for
each
information
product.
The
Healthcare
and
Education
Officer
will
be
able
to
respond
to
a
user’s
request
for
source
material.
We
find
your
feedback
extremely
valuable,
so
if
you
would
like
to
comment
on
our
information
policy
or
any
of
our
publications,
please
contact
us.
Telephone:
0161
7994646
E
mail:
anne.sutcliffe@paget.org.uk
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